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Joined 11 months ago
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Cake day: October 4th, 2023

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  • What a tragedy. I hope they push out national changes so her death wasn’t a complete waste. Refusing a feeding tube is bananas.

    Here in the US, the discourse around ME/CFS is changing significantly now that doctors are constantly encountering long COVID and sequelae of other viral illnesses. (Another great example of this phenomenon is the sequelae like eye and joint problems among Ebola survivors, which didn’t exist as a patient cohort until 2015.) It’s unfortunate that so many people have long COVID, but the volume of patients is definitely shaking up how doctors are thinking about “mystery illnesses.” When millions of people are following a pattern, and the sample sizes are big enough to prove things, things change. I hope that MS/CFS sufferers benefit from all of this new research and training.




  • I always find that starting any new job is exhausting! There is so much to learn - not even the “work” itself, but processes, personalities, and systems that differ from workplace to workplace. Unless you are struggling hard financially, give yourself some time. For me, it takes at least 4-6 months in a new job to feel ready to add something else. (Now that I own my own business, it’s just adding the next thing in the business…then 4-6 months later, the next thing…). You will have to feel out your own balance and where you can draw the line. I don’t think it’s a bad idea to make more money, if that’s a goal. But you can’t do it at the expense of your sanity, relationships, health, etc. Make it sustainable.

    I’m in the US for context, but have lived all over the world, and don’t participate in the hustle culture here. I work hard for my clients and there are crunch times, but on average it’s about 30-35 hours a week. That’s a sweet spot for me! I hope you find yours.



  • I don’t know about the notes, but I wanted to say that it takes time and effort to unlearn this idea that we are supposed to be productive all the time. This is a lie that many powerful people want us to internalize so we work ourselves to death, and it’s very insidious and omnipresent. It’s become a perverse “value” in our society at large and something to be proud of.

    But you are not a machine. You’re a person. And that means you need and deserve rest and comfort.

    You have inherent worth outside of your productivity, how hard you work, or how much money you make.

    Those metrics don’t tell us anything about how you are as a person, your values, your kindness, your strengths, the joy you bring others.

    ALL of that stuff has value. Real true value. You have to start challenging these beliefs about your worthiness. Because you are already worthy.

    Some further reading/resources:

    1. The Body Is Not An Apology
    2. Rest is Resistance
    3. Burnout: The Secret to Unlocking the Stress Cycle